When A Child Has Congenital Heart Disease | TODAY




Each year, 40,000 children are born with some form of congenital heart disease. In a world of tubes and oxygen, surgeries and beeping monitors, parents and medical teams battle to keep their tiny hearts beating against the odds โ€“ but itโ€™s the children themselves who are the true heroes.

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When A Child Has Congenital Heart Disease | TODAY

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35 thoughts on “When A Child Has Congenital Heart Disease | TODAY”

  1. I have tetralogy of fallot and now pulmonary regurgitation and right ventricular hypertrophy. It's amazing how far technology has come. My prayers are with the CHD families!

  2. Im due this june 26 and my daughter has genital heart disease i pray every day our baby gets the help she needs when she arrives and is able to come home with her family and live a long life bless all these babies i wish them and their families nothing but happiness and hope they get to go home too.

  3. I am 16 and i have pulmonary atresia a CHD. Ive had 3 major surgeries and 3 small ones. I am so thankful that my doctors did what they did and saved me, now i can do most things a normal child can do. Thank you for sharing this. Sending all my love โคโคโค

  4. Our daughter was born with 4 heart defects. almost 6 months, she will have to undergo open heart surgery on the 19th. We will be vlogging her journey. Please subscribe! We just put up our first vlog :

  5. This is eye opening! I was born with full heart block in 1995, I grew up with non stop pacemaker changes because of difficulties and infections. I wish the Canadian news would start taking notice too help get the word out.

  6. My son was born with HLHS, Dr Ohye was his surgeon. Heโ€™s now 16, and thriving. I give praise to God and know the outcomes are not always what we want. Thank you for this video. It brought back a lot of memories walking through the halls of Motts Childrenโ€™s

  7. I weep every time I watch this, my beautiful 5 month old daughter has had 2 open heart surgeries with more ahead, and this video touches on so many raw and real emotions. Thank you.

  8. My son has went through two open heart surgeries, and numerous heart caths and I am so thankful he will be two years old next month. Nothing ever prepared me for what being a heart parent meant. About how itโ€™s the scariest but most rewarding job in the world. This video touched my heart. And I thank the team who filmed it and put it out there for the world to see a brief few moment in the life of a heart parent.

  9. I am a parent of a CHD child. He will be celebrating his 29th Birthday next month!! This video is so spot on with what we all have endured. Our son has had 7 open heart surgeries and with each one we worry have we "used up" our blessings. But he has thrived into a beautiful man who will be getting married this year!

  10. Thank you so much for this video. I am a mother to a chd child and the ups and downs you face everyday is hard my chd child is 18 months old and doing really good she has her 4th surgery in the summer pray for my chd family. And to all Chd families you are all in my prayers. I am so blessed to be a mother to a beautiful chd warrior

  11. Thank you Today Show! I am a 27 year old with CHD. I have a CHD known as Tetralogy Of Fallot Absent Pulmonary Valve. I have had two open heart surgeries. Thanks to my congenital heart team at the Helen B. Taussig Congenital Heart Center at the Johns Hopkins Children's Center I am alive. I am 1 in 100! I am a CHD warrior! Thank you for bringing awareness to CHD. I have had a lot of issues over the last couple of years and I have now been on heart function medication for a little over 2 years. Since I have had my heart function medication my heart function has been better. I am so lucky to have a great team who has fought to keep me alive. I am grateful to be alive. CHD is a tough battle, but I keep fighting every day. Thank you so much for the awareness!

  12. Thank you Zach and Lexi for sharing your story…our story…with the world. It was our pleasure to have our son be part of this touching and brilliant video about CHD.

  13. I WAS JUST DIAGNOSED WITH CONGESTIVE HEART FAILURE LAST YEAR BUT I'M NOT WORRIED ABOUT IT BECAUSE THAT'S JESUS CHRIST'S PROBLEM NOW NOT MINE!! AFTER SEEING WHAT MY DR.S HAVE SAID & DONE I'M DEPENDING ON THEM EITHER; TO MANY," I DON'T KNOW THE ANSWER ANSWERS ALREADY SO I'M GOOD; NEVER TRUSTED SCIENCE ANT WAY=IT'S EXPERIMENTAL & I AIN'T NOBODY'S EXPERIMENT!!โœŒโœŒ

  14. As a heart mama to a 10 year old with Tetralogy, I can say this is spot on. Thank you, Today show for a very real, honest story. And to all the parents and the kids, my heart goes out to you too. This is indeed our story of strength and love.

  15. I am the wife of a Pediatric Cardiologist who is newly retired. I view all these babies, children, adults as "family" I never met but integral to our life as an actual family.
    The next challenge is discovery of the molecular basis of heart development, where science and clinical medicine converge.

  16. My best friend's daughter made it exactly 30 days. The cut is still fresh — her funeral was only a couple weeks ago — so this video was especially painful to watch. But also uplifting. Thank you for including both the success stories as well as the little angels who left us way too soon.

  17. We should make a fight for General heart disease raise money I pray for all thanks to America for having the world's best heart and doctors

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